On June 3rd, Duchenne Ireland arrived at Leinster Hose to meet with representatives of the Health Research Board HRB, Health Service Executive, Disability Authority, the Chief Medical Officer, Mary Harney, Irish Clinicians and MDI to discuss Making Ireland an internationl clinical trial site for Duchenne.
The meeting was very positive and centered around a proposal document that Duchenne Ireland had issued to all parties in relation to Ireland's participation in International Clinical Trials, Adoption of the recently published International Consensus Standards of Care for Duchenne and vital further research funding for Duchenne.
The proposal was well received and all parties agreed the objectives were justified and required and agreed to move to the next stage of making the proposal a reality in Ireland.
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Tags: clinical trial site, standards of care, research
Government Lobbying | News | Research
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