The Irish Examiner ran a "Page 2" picture and story of one Irish Family fighting for funding for Exon Skipping Trials in the UK. Inteview occurred prior to the March 2nd Duchene Information Day held at the Clarrion hotel Liffey Valley Dublin. The online version is available here:
http://www.irishexaminer.com/text/story.asp?j=ojcwgbmhmheycwey&p=5z634353&n=52634407