The 2009 Flora Ladies Mini Marathon was awash with Duchenne Ireland T-Shirts this year as more than 100 participants took part to support Duchenne Muscular Dystrophy Research. A truely fantastic effort by all involved. Some scenes from the event show how the Duchenne Community is building up momentum in Ireland as more supporters see the benefits of supporting research.

The next national event is the "Tour Duchenne" cycle event which takes place on Saturday the 12th and Sunday 13th of September. The cycle takes riders right across Ireland from Galway NUI to Maynooth NUI. To register please contact John on 083-3348634. Be quick as registration will soon close. See our events page for more details.

The First Asian DMD conference that will take place on February 28th and March 1st in Bangalore, India, will be broadcasted live on the UPPMD website.

Please follow the video footage of the conference here and the conference programme can be found here

Please take the opportunity to watch this special event

A special tribute night was held on Saturday 22nd of November in Buncrana, Co. Donegal to remember Darren McDonagh from Buncrana who passed away this year. Darren had Duchenne Muscular Dystrophy, and despite it's challenges, the fantastic video of his life that was played at the tribute night really showed how well he had overcome these challenges at home, in school, and in his communittee supported by his family and many friends who turned up in great numbers on the night.

The Night was a fantastic success with music by the Drifters keeping everyone dancing well in to the small hours of the morning. All Proceeds from the night were kindly donated to Duchenne Ireland for translational research into Duchenne.

Darren's parents spoke about how Darren had wanted to ensure that other young boys with Duchenne would have a chance at a better future by funding research into Duchenne.

John Gorman from Duchenne Ireland praised the people of Buncrana for their fundraising efforts during the year and support at events such as the tribute night. He outlined how Duchenne Ireland was working both nationally and internationally to bring about therapies for this generation of boys with Duchenne and that this work was only made possible through such communitee support.

The Competition From Monday the 11th of August, One person each day will be selected to take a short trip on the bus from home to work. You will only be naked on the bus and will get on the bus fully clothed and get off fully clothed… After 15 trips the person with the most money raised for charity wins all the prizes on the bus which include a holiday for two to Crete ! Our Contestent John McConnell from Buncrana will be on the Naked Bus for Duchenne Ireland on Friday the 29th August at 11am. He will be picked up from his house in Buncrana and travel Naked on the bus around Innishowen to his office at the Inish Times, on main street Buncrana. John is hoping to raise a huge amount for Duchenne Ireland's national fundraising drive and will be collecting at local shops and businesses in the vicinity. Please support his "brave" efforts, and give generously. He really does deserve this holiday ! The Cause All the money raised by John will go towards Research into therapies for Duchenne Muscular Dystrophy. If you believe you have a similar calling to help our charity, then please email us at info@duchenne.ie and we will be more than delighted to help. As you can see, there are "no limits" to what people will do for your boys and girls with Duchenne Muscular Dystrophy. For more information and a sneak peak at the previous contestents, check out the radio station running the event here The Result John collected a fantastic €1776 for Duchenne Ireland and put Duchenne Research in the eyes and ears of the people of Buncrana and further afield. Well done John your a credit to the Inish Times. Please check out the video below to see how far John Really went to help boys with Duchenne Muscular Dystrophy. If you think you can too can help fund raise for "real" therapies for these boys, then contact us on info@duchenne.ie or ring John Gorman on 083-3348634. Every little bit helps.