Duchenne Posts

RSSCollaboration (4)

Date Title Comments Rating
2009-10-30 Accident and Emergency file 1 4.5
2009-03-23 Presentations from the first Asian DMD conference 14 4.5
2009-02-19 DMD Registry For Irish Boys 9 2.3
2008-10-23 Duchenne Ireland become a member of Treat-NMD Network Of Excellence 3 3

RSSEvents (20)

Date Title Comments Rating
2009-09-20 Politicians and Researchers Rally to Support Tour Duchenne 27 5
2009-09-15 Septemberfest 11 5
2009-08-29 First Irish National Cycling Event For Duchenne Muscular Dystrophy Research 6 3
2009-07-20 Over 100 Supporters Run For Duchenne Ireland in the 2009 Flora Mini Marathon 21 5
2009-05-14 Dáil to debate motion on Duchenne Muscular Dystrophy on May 21st 2009 29 3.7
2009-03-23 Presentations from the first Asian DMD conference 14 4.5
2009-02-27 The First Asian DMD conference will be broadcasted live 15 3
2008-11-23 The Drifters show support for Duchenne Ireland 23 3
2008-09-30 "Golf 4 Duchenne" raises €13,000 for Duchenne Ireland Research 6 None
2008-08-25 Donegal Man Gets Naked For Duchenne Research 24 5
2008-08-06 Night at the races 11 2
2008-07-29 Duchenne Ireland Launches First Research Grant ! 6 2
2008-07-29 Duchenne Muscular Dystrophy Research Prize Draw Winners 7 5
2008-07-23 4 Top Golf Clubs Support "Golf 4 Duchenne" 3 3
2008-07-10 Charity Begins At Home - Fundraising Effort For Brothers With Duchenne 6 2.6
2008-06-26 Duchene Ireland Super National Draw 6 5
2008-06-26 Grandparents fight for their grandchildren by supporting new charity - "Duchenne Ireland" 7 1
2008-06-20 Malin dad's delight at generous Inishowen 26 3
2008-06-19 Flora Dublin City Womens Mini Marathon For Duchenne Research 6 1
2008-04-05 Duchenne Muscular Dystrophy Lobby Day 11 1

RSSFundraising (18)

Date Title Comments Rating
2009-09-20 Politicians and Researchers Rally to Support Tour Duchenne 27 5
2009-09-15 Septemberfest 11 5
2009-08-29 First Irish National Cycling Event For Duchenne Muscular Dystrophy Research 6 3
2009-07-20 Over 100 Supporters Run For Duchenne Ireland in the 2009 Flora Mini Marathon 21 5
2008-09-30 "Golf 4 Duchenne" raises €13,000 for Duchenne Ireland Research 6 None
2008-08-25 Donegal Man Gets Naked For Duchenne Research 24 5
2008-07-29 Duchenne Muscular Dystrophy Research Prize Draw Winners 7 5
2008-07-23 4 Top Golf Clubs Support "Golf 4 Duchenne" 3 3
2008-07-10 Charity Begins At Home - Fundraising Effort For Brothers With Duchenne 6 2.6
2008-06-26 Duchene Ireland Super National Draw 6 5
2008-06-26 Grandparents fight for their grandchildren by supporting new charity - "Duchenne Ireland" 7 1
2008-06-20 Malin dad's delight at generous Inishowen 26 3
2008-06-19 Flora Dublin City Womens Mini Marathon For Duchenne Research 6 1
2008-06-09 Marathon Treadmill Event Increases Funding For Duchenne Research 2 1
2008-05-20 Quiz in Simpsons,Carndonagh,Co.Donegal 5 1
2008-05-15 Duchenne Charity Auction 8 1
2008-05-01 Government Apathy - Duchenne Heartbreak 3 3
2008-03-22 Desperate families in a race to save children 0 1

RSSGovernment Lobbying (13)

Date Title Comments Rating
2009-05-26 Dail debate dissappointment as Duchenne Counter Motion Rejected by Government 25 5
2009-05-14 Dáil to debate motion on Duchenne Muscular Dystrophy on May 21st 2009 29 3.7
2009-02-19 Dáil debate on Duchenne Muscular Dystrophy 3 2.3
2008-11-12 Duchenne Ireland meets the Tanaiste 2 1.8
2008-09-28 US Congress passes reauthorization of the MD-CARE Act --- Irish Government Does Nothing... 14 2
2008-07-30 Govt refuses to fund life-saving muscular dystrophy trials for Irish children 3 2.1
2008-07-13 McHugh hits out at Duchenne 'insult' 4 3.3
2008-07-04 Govt urged to find a way to fund life-saving chance for 150 children with Duchenne Muscular Dystrophy 3 2
2008-06-10 Up to Govt to assist children with Muscular Dystrophy to take part in UK trial – Doyle calls for urgent action 4 1
2008-05-01 Government Apathy - Duchenne Heartbreak 3 3
2008-04-05 Duchenne Muscular Dystrophy Lobby Day 11 1
2008-04-01 Duchenne Ireland at the March for a "Decent Health System" 17 2.3
2008-03-22 Desperate families in a race to save children 0 1

RSSNews (21)

Date Title Comments Rating
2010-03-05 Duchenne Ireland Launches 2010 International Research Grant Call 0 5
2009-05-26 Dail debate dissappointment as Duchenne Counter Motion Rejected by Government 25 5
2009-03-01 Patient groups push rare disease research 14 2
2009-02-27 The First Asian DMD conference will be broadcasted live 15 3
2009-02-19 BioMarin Postpones Utrophin Upregulation Clinical Trials For Duchenne 40 5
2009-02-19 AVI BioPharma Announces Treatment of First Patient in Systemic Clinical Trial of AVI-4658 for Treatment of Duchenne Muscular Dystrophy 6 3
2009-02-19 Dáil debate on Duchenne Muscular Dystrophy 3 2.3
2009-02-19 DMD Registry For Irish Boys 9 2.3
2008-10-23 Duchenne Ireland become a member of Treat-NMD Network Of Excellence 3 3
2008-09-28 US Congress passes reauthorization of the MD-CARE Act --- Irish Government Does Nothing... 14 2
2008-07-30 Govt refuses to fund life-saving muscular dystrophy trials for Irish children 3 2.1
2008-07-29 Duchenne Ireland Launches First Research Grant ! 6 2
2008-07-13 McHugh hits out at Duchenne 'insult' 4 3.3
2008-07-04 Govt urged to find a way to fund life-saving chance for 150 children with Duchenne Muscular Dystrophy 3 2
2008-06-10 Up to Govt to assist children with Muscular Dystrophy to take part in UK trial – Doyle calls for urgent action 4 1
2008-05-15 Duchenne Charity Auction 8 1
2008-04-05 Duchenne Muscular Dystrophy Lobby Day 11 1
2008-04-01 Duchenne Ireland at the March for a "Decent Health System" 17 2.3
2008-03-22 Families reject Irish Government washing of hands of boys with Duchenne Muscular Dystrophy 2 1
2008-03-22 Fight for funds to help boys live longer 4 1
2008-03-22 Desperate families in a race to save children 0 1

RSSResearch (7)

Date Title Comments Rating
2010-03-05 Duchenne Ireland Launches 2010 International Research Grant Call 0 5
2009-09-20 Politicians and Researchers Rally to Support Tour Duchenne 27 5
2009-03-23 Presentations from the first Asian DMD conference 14 4.5
2009-03-01 Patient groups push rare disease research 14 2
2009-02-19 BioMarin Postpones Utrophin Upregulation Clinical Trials For Duchenne 40 5
2009-02-19 AVI BioPharma Announces Treatment of First Patient in Systemic Clinical Trial of AVI-4658 for Treatment of Duchenne Muscular Dystrophy 6 3
2009-01-21 New Research Verifies Next Generation Exon Skipping Technology 33 5

Total

45 posts
0 comments
130 raters

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