Duchenne Posts

RSSCollaboration (8)

Date Title Rating
2011-07-25 Duchenne Ireland completes the initial stage of it's Personalized Exon Skipping Research Project 3
2011-06-16 Duchenne Ireland Exon Skipping Research Project Commences Patient Enrollment None
2011-02-10 Run A Muck Challenge supports Duchenne Ireland fundraising 5
2011-01-15 Duchenne Ireland seeks parents interested in Exon Skipping Research Project 4.3
2009-10-30 Accident and Emergency file 4.7
2009-03-23 Presentations from the first Asian DMD conference 4.5
2009-02-19 DMD Registry For Irish Boys 2.3
2008-10-23 Duchenne Ireland become a member of Treat-NMD Network Of Excellence 3

RSSEvents (21)

Date Title Rating
2011-04-05 Flora Women's Mini Marathon 2011 5
2009-09-20 Politicians and Researchers Rally to Support Tour Duchenne 5
2009-09-15 Septemberfest 5
2009-08-29 First Irish National Cycling Event For Duchenne Muscular Dystrophy Research 3.4
2009-07-20 Over 100 Supporters Run For Duchenne Ireland in the 2009 Flora Mini Marathon 5
2009-05-14 Dáil to debate motion on Duchenne Muscular Dystrophy on May 21st 2009 3.7
2009-03-23 Presentations from the first Asian DMD conference 4.5
2009-02-27 The First Asian DMD conference will be broadcasted live 3
2008-11-23 The Drifters show support for Duchenne Ireland 3.4
2008-09-30 "Golf 4 Duchenne" raises €13,000 for Duchenne Ireland Research None
2008-08-25 Donegal Man Gets Naked For Duchenne Research 4.5
2008-08-06 Night at the races 2
2008-07-29 Duchenne Ireland Launches First Research Grant ! 2
2008-07-29 Duchenne Muscular Dystrophy Research Prize Draw Winners 5
2008-07-23 4 Top Golf Clubs Support "Golf 4 Duchenne" 3
2008-07-10 Charity Begins At Home - Fundraising Effort For Brothers With Duchenne 2.6
2008-06-26 Duchene Ireland Super National Draw 5
2008-06-26 Grandparents fight for their grandchildren by supporting new charity - "Duchenne Ireland" 1
2008-06-20 Malin dad's delight at generous Inishowen 3
2008-06-19 Flora Dublin City Womens Mini Marathon For Duchenne Research 1
2008-04-05 Duchenne Muscular Dystrophy Lobby Day 1

RSSFundraising (21)

Date Title Rating
2011-04-05 Flora Women's Mini Marathon 2011 5
2011-02-10 Run A Muck Challenge supports Duchenne Ireland fundraising 5
2010-10-03 Duchenne Ireland Funds Cutting Edge Personalised Research 5
2009-09-20 Politicians and Researchers Rally to Support Tour Duchenne 5
2009-09-15 Septemberfest 5
2009-08-29 First Irish National Cycling Event For Duchenne Muscular Dystrophy Research 3.4
2009-07-20 Over 100 Supporters Run For Duchenne Ireland in the 2009 Flora Mini Marathon 5
2008-09-30 "Golf 4 Duchenne" raises €13,000 for Duchenne Ireland Research None
2008-08-25 Donegal Man Gets Naked For Duchenne Research 4.5
2008-07-29 Duchenne Muscular Dystrophy Research Prize Draw Winners 5
2008-07-23 4 Top Golf Clubs Support "Golf 4 Duchenne" 3
2008-07-10 Charity Begins At Home - Fundraising Effort For Brothers With Duchenne 2.6
2008-06-26 Duchene Ireland Super National Draw 5
2008-06-26 Grandparents fight for their grandchildren by supporting new charity - "Duchenne Ireland" 1
2008-06-20 Malin dad's delight at generous Inishowen 3
2008-06-19 Flora Dublin City Womens Mini Marathon For Duchenne Research 1
2008-06-09 Marathon Treadmill Event Increases Funding For Duchenne Research 1
2008-05-20 Quiz in Simpsons,Carndonagh,Co.Donegal 1
2008-05-15 Duchenne Charity Auction 1
2008-05-01 Government Apathy - Duchenne Heartbreak 3
2008-03-22 Desperate families in a race to save children 1

RSSGovernment Lobbying (15)

Date Title Rating
2010-07-13 Duchenne Ireland Parent Pushes for Irish Clinical Trial Site for Duchenne 5
2010-06-15 Duchenne Ireland meets Government delegation to create Irish Clinical Trial Site for Duchenne 5
2009-05-26 Dail debate dissappointment as Duchenne Counter Motion Rejected by Government 5
2009-05-14 Dáil to debate motion on Duchenne Muscular Dystrophy on May 21st 2009 3.7
2009-02-19 Dáil debate on Duchenne Muscular Dystrophy 2.3
2008-11-12 Duchenne Ireland meets the Tanaiste 1.8
2008-09-28 US Congress passes reauthorization of the MD-CARE Act --- Irish Government Does Nothing... 2
2008-07-30 Govt refuses to fund life-saving muscular dystrophy trials for Irish children 2.1
2008-07-13 McHugh hits out at Duchenne 'insult' 3.5
2008-07-04 Govt urged to find a way to fund life-saving chance for 150 children with Duchenne Muscular Dystrophy 2
2008-06-10 Up to Govt to assist children with Muscular Dystrophy to take part in UK trial – Doyle calls for urgent action 1
2008-05-01 Government Apathy - Duchenne Heartbreak 3
2008-04-05 Duchenne Muscular Dystrophy Lobby Day 1
2008-04-01 Duchenne Ireland at the March for a "Decent Health System" 2.3
2008-03-22 Desperate families in a race to save children 1

RSSNews (29)

Date Title Rating
2011-10-24 Santhera Presents Clinical Data of Catena® in Duchenne Muscular Dystrophy at the 2011 Congress of the World Muscle Society None
2011-03-28 Results of Prosensa’s Extended Phase I/II Exon-skipping Trial in Duchenne Muscular Dystrophy None
2010-12-22 Genzyme Ataluren in nmDBMD Programme Update 5
2010-07-13 Duchenne Ireland Parent Pushes for Irish Clinical Trial Site for Duchenne 5
2010-06-15 Duchenne Ireland meets Government delegation to create Irish Clinical Trial Site for Duchenne 5
2010-06-02 AVI-4658 Demonstrates First Ever Reported Generation of Greater Than 50% Dystrophin-Positive Muscle Fibers in a Patient Following Systemic Administration in Duchenne Muscular Dystrophy; All Patients 5
2010-04-22 Exon Skipping Continues To Show Promise 5
2010-03-29 Update for patients and families on ataluren trial results in nonsense mutation Duchenne/Becker muscular dystrophy 5
2010-03-05 Duchenne Ireland Launches 2010 International Research Grant Call 5
2009-05-26 Dail debate dissappointment as Duchenne Counter Motion Rejected by Government 5
2009-03-01 Patient groups push rare disease research 2
2009-02-27 The First Asian DMD conference will be broadcasted live 3
2009-02-19 BioMarin Postpones Utrophin Upregulation Clinical Trials For Duchenne 5
2009-02-19 AVI BioPharma Announces Treatment of First Patient in Systemic Clinical Trial of AVI-4658 for Treatment of Duchenne Muscular Dystrophy 3
2009-02-19 Dáil debate on Duchenne Muscular Dystrophy 2.3
2009-02-19 DMD Registry For Irish Boys 2.3
2008-10-23 Duchenne Ireland become a member of Treat-NMD Network Of Excellence 3
2008-09-28 US Congress passes reauthorization of the MD-CARE Act --- Irish Government Does Nothing... 2
2008-07-30 Govt refuses to fund life-saving muscular dystrophy trials for Irish children 2.1
2008-07-29 Duchenne Ireland Launches First Research Grant ! 2
2008-07-13 McHugh hits out at Duchenne 'insult' 3.5
2008-07-04 Govt urged to find a way to fund life-saving chance for 150 children with Duchenne Muscular Dystrophy 2
2008-06-10 Up to Govt to assist children with Muscular Dystrophy to take part in UK trial – Doyle calls for urgent action 1
2008-05-15 Duchenne Charity Auction 1
2008-04-05 Duchenne Muscular Dystrophy Lobby Day 1
2008-04-01 Duchenne Ireland at the March for a "Decent Health System" 2.3
2008-03-22 Families reject Irish Government washing of hands of boys with Duchenne Muscular Dystrophy 1
2008-03-22 Fight for funds to help boys live longer 1
2008-03-22 Desperate families in a race to save children 1

RSSResearch (21)

Date Title Rating
2011-10-24 Santhera Presents Clinical Data of Catena® in Duchenne Muscular Dystrophy at the 2011 Congress of the World Muscle Society None
2011-09-05 Genzyme ataluren in nmDBMD Programme Update None
2011-07-25 Duchenne Ireland completes the initial stage of it's Personalized Exon Skipping Research Project 3
2011-06-16 Duchenne Ireland Exon Skipping Research Project Commences Patient Enrollment None
2011-04-11 Duchenne Irelands Gene Therapy Research Produces Results 5
2011-04-05 Flora Women's Mini Marathon 2011 5
2011-03-28 Results of Prosensa’s Extended Phase I/II Exon-skipping Trial in Duchenne Muscular Dystrophy None
2011-01-15 Duchenne Ireland seeks parents interested in Exon Skipping Research Project 4.3
2010-12-22 Genzyme Ataluren in nmDBMD Programme Update 5
2010-10-03 Duchenne Ireland Funds Cutting Edge Personalised Research 5
2010-06-15 Duchenne Ireland meets Government delegation to create Irish Clinical Trial Site for Duchenne 5
2010-06-02 AVI-4658 Demonstrates First Ever Reported Generation of Greater Than 50% Dystrophin-Positive Muscle Fibers in a Patient Following Systemic Administration in Duchenne Muscular Dystrophy; All Patients 5
2010-04-22 Exon Skipping Continues To Show Promise 5
2010-03-29 Update for patients and families on ataluren trial results in nonsense mutation Duchenne/Becker muscular dystrophy 5
2010-03-05 Duchenne Ireland Launches 2010 International Research Grant Call 5
2009-09-20 Politicians and Researchers Rally to Support Tour Duchenne 5
2009-03-23 Presentations from the first Asian DMD conference 4.5
2009-03-01 Patient groups push rare disease research 2
2009-02-19 BioMarin Postpones Utrophin Upregulation Clinical Trials For Duchenne 5
2009-02-19 AVI BioPharma Announces Treatment of First Patient in Systemic Clinical Trial of AVI-4658 for Treatment of Duchenne Muscular Dystrophy 3
2009-01-21 New Research Verifies Next Generation Exon Skipping Technology 5

Total

61 posts

162 raters

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