Donegal Man Gets Naked For Duchenne Research

by Admin 8/25/2008 9:43:00 AM

 

The Competition

From Monday the 11th of August, One person each day will be selected to take a short trip on the bus from home to work. You will only be naked on the bus and will get on the bus fully clothed and get off fully clothed…

After 15 trips the person with the most money raised for charity wins all the prizes on the bus which include a holiday for two to Crete !

Our Contestent

John McConnell from Buncrana will be on the Naked Bus for Duchenne Ireland on Friday the 29th August at 11am. He will be picked up from his house in Buncrana and travel Naked on the bus around Innishowen to his office at the Inish Times, on main street Buncrana.

John is hoping to raise a huge amount for Duchenne Ireland's national fundraising drive and will be collecting at local shops and businesses in the vicinity. Please support his "brave" efforts, and give generously. He really does deserve this holiday !

The Cause

All the money raised by John will go towards Research into therapies for Duchenne Muscular Dystrophy.

If you believe you have a similar calling to help our charity, then please email us at info@duchenne.ie and we will be more than delighted to help. As you can see, there are "no limits" to what people will do for your boys and girls with Duchenne Muscular Dystrophy.

For more information and a sneak peak at the previous contestents, check out the radio station running the event here

The Result

John collected a fantastic €1776 for Duchenne Ireland and put Duchenne Research in the eyes and ears of the people of Buncrana and further afield. Well done John your a credit to the Inish Times.

Please check out the video below to see how far John Really went to help boys with Duchenne Muscular Dystrophy.

If you think you can too can help fund raise for "real" therapies for these boys, then contact us on info@duchenne.ie or ring John Gorman on 083-3348634. Every little bit helps.

 

 

   



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Events | Fundraising

Government Apathy - Duchenne Heartbreak

by Admin 5/1/2008 3:54:00 AM

Heartbreak! Two devastated Inishowen families are at their wits end after being twice snubbed vital funding which could save their sick children's lives.

The Derry Journal has continued to publicise the lack of effort, imagination and drive shown by the present government in initially refusing to fund Clinical trials into Duchenne Muscular Dystrophy.

Their solution was to recommend the Healt Research Board (HRB). The HRB have indicated that they could only help in funding such a trial if there was a co-funded effort from a registered charity.

Currently MDI, Irelands National Muscular Dystrophy Organization has no ability to co-fund anything close to half of the figure required, and thus the HRB alternative is of no use.

However, the parents involved have initiated an appeal to begin getting some of the appropriate money in place, while they wait in hope for a U-Turn by the government and support the trials that may radically change the lives of children with Duchenne Muscular Dystrophy.

Pictures and full story thanks to the Derry Journal here: 

http://www.derryjournal.com/sectionhome.aspx?sectionID=3914



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Fundraising | Government Lobbying

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