Duchenne Ireland took to the streets of Dublin for the 2008 Flora Womens Mini Marathon on 2nd June 2008. On this glorious bank holiday Monday, up to fifty supporters of Duchenne Ireland ran, walked (and some even crawled) the streets of Dublin in the annual Flora Womens Mini Marathon. Our supporters from all over Ireland joined together in Dublin city center to support "Duchenne Ireland" whose purpose is to raise awareness and funding for translational research into Duchenne Muscular Dystrophy.
Duchenne Muscular Dystrophy, a genetic disorder affecting 1 in 3,500 boys, gradually leaves them unable to walk by early teens and has a life expectancy in the late teens to early twenties in Ireland. Advances in health care outside Ireland have brought life expectancy higher in other countries and Duchenne Ireland is also driving to have this fact recongised by those who care for DMD patients in Ireland, to ensure Irish boys get this same standard of care.
Duchenne Ireland recently kicked off a nationwide fundraising drive in the hope to support a number of research projects currently underway in the UK, Holland and France, where gene therapy is showing promise in initial trials that would dramatically alter the course of this disease for the affected children.
"One has to remember, with this disease, we are dealing with the number 1 genetic killer of children worldwide" said John Gorman father of two boys who have Duchenne Muscular Dystrophy. All proceeds from the run go to Duchenne Ireland, a new charity set up specifically to fund translational research into Duchenne Muscular Dystrophy.
The charity hopes to raise a significant amount of money over the next six months and then continue to support worldwide research into the continued search for therapies and a cure for this terrible disease.
Go On, Give us your support today !
If you are thinking of doing a run or any other sporting event, please think about having Duchenne Ireland as your charity for the event. We, and all of the kids you would be helping would love your support.
Effectively save these kids lives by supporting directly via bank transfer or direct debit to the following bank account details:
Duchenne Ireland
Ulster Bank
Moville, Co. Donegal
Account Number: 10081297
Sort Code: 98-61-25
Or contact us directly with donations or suggestions for events you would like to run n our behalf to info@duchenne.ie
NOTE: Remember if you contribute over EUR 250 in one year the taxman will give us back your tax ! See how here
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