7/13/2010 3:43:00 PM
Last Monday, Duchenne was brought to the attention of the Irish Nation,
as a parent of 2 boys with Duchenne appeared on the Morning Show on TV3
was to highlight the current work Duchenne Ireland are engaged in with
the Government to get Ireland registered as a clinical trial site for
International Clinical Trials in Duchene.
Duchenne Ireland, Muscular
Dystrophy Ireland, the Central Remedial Clinic and the European Rare
Disease Clinical Trial Center at University College Cork have engaged
with the Government to bring clincal trials which are active
internationally to Ireland, for Irish boys participation.
The interview reiterates the importance of the clinical trial center
in Ireland for Duchenne, the need for Parents of boys with Duchenne to
register their boys on the DMD Registry and to ensure their sons receive care in accordance with the recently published Standards of Care for Duchenne Muscular Dystrophy (which also has a published Family Friendly Version).
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