On April 9th 2008, Duchene Ireland and Muscular Dystrophy Ireland will convene the 2008 National Muscular Dystrophy Annual Lobby Day in Buswells Hotel on Kildare Street, Dublin 2, next to the Dáil (Irish Parliament).

Members of Duchenne Ireland and Muscular Dystrophy Ireland (MDI) will come from all corners of Ireland to discuss matters of critical importance to Muscular Dystrophy sufferers. Top of the agenda for Duchenne Ireland will be the funding support for the "Exon Skipping" trials in the UK.

 Nearly three years have passed since Duchenne Ireland parents met with MDI and Government officials to try and secure funding for the "Exon Skipping" trials in the UK and still no money has been sanctioned to support this life saving clinical trial, that is the best hope for DMD boys and girls that has ever been seen.

The interesting twist to this Lobby day, is that the TDs are on the side of the boys and girls, with many of them voicing their support for the lobby day and booking their place well in advance of the day. So remember 12 noon in Buswells Hotel - Be their and voice your support to save these kids lives. And Remember - It's Free Admission !

Duchenne Muscular Dystrophy is 100% fatal at present - This does not have to be the case - support Duchenne Ireland and Muscular Dystrophy Ireland now and tell your TDs to support the Exon Skipping Trials in the UK.

Make the difference - Voice your support:

April 9th 2008 - Buswells Hotel - Kildare Street, Dublin 2, @ 12 noon.

Directions to Buswells - 9th April 2008 @ 12 Noon

The weather held up as members of the different organisations made calls to have the current attempt at a two tiered health system to be brought to a halt and to give equal health care to all, irrespective of their income.

Dr. Orla Hardyman and Dr. John Crown led the attacks on the government on behalf of the Irish medical consultants for not funding the health service properly. Dr. Hardyman stating that many aspects of the health service were good and should not be continually criticised but needed more funding.

A concerned member of the public pleads with Dr. Orla Hardyman to view her personal letters related to her personal health matters.  

The Crowd moves towards the stage to hear the speakers outside "Buswells" hotel, the location for the Annual Duchenne Muscular Dystrophy Lobby day to be held on April 9th 2008. 

On that day parents of children with Duchenne Muscular Dystrophy will meet with TDs from around Ireland to get their support to persuade the Government to back the Exon Skipping Trials for DMD currently in clinical trials in the UK. These trials are supported by group of professionals known as the MDEX Consortium, who are driving hard to bring translational research to the fore in finding therapies for this, the cruelest of diseases that impacts 1 in 3,500 boys and sometimes also girls.

These trials if proven successful will provide a major increase in life expectancy for children with Duchenne Muscular Dystrophy. 

Join us and lend your support on April 9th @ 12pm in Buswells Hotel.....